Samantha Barber

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Samantha Barber is CEO of Gene People, a charity that provides support and information to those affected by genetic conditions and their families, and to condition-specific support groups. Prior to Gene People, Samantha was Joint Interim CEO of the Tuberous Sclerosis Association, and Interim CEO of the Batten Disease Family Association. She is a Director of Recordati Rare Diseases Foundation.

A charity sector lifer, Samantha has worked with a range of charities both as an executive and trustee. She has interests in health, housing and heritage. Currently, she is a trustee of Bexhill Heritage Society, and committee member for the Chartered Secretaries’ Charitable Trust.

ABPI Patient Advisory Council

The ABPI Patient Advisory Council - made up of eight chief executives or members of the executive leadership team from across UK patient organisations, provides ABPI Board Members and Senior Executive Team with meaningful patient engagement to inform strategy, policy priorities and work-plans across the ABPI.